Yes well, maybe one of these days I will have time to write with more artistry, I'd like to try, but as it is I am going so much of the time that by the time I find a minute I feel numb, braindead and as though I might wake up here in a little while because I fell asleep in a puddle of drool and the air conditioner has chilled it past the point of being able to sleep. I just want to say a little of whatt I have been thinking and feeling.
My friend Jaime called me the other day. I was pleased and surprised. He just recently turned 50 and his voice sounded rough. I have been thinking about him a lot. Jaime is a paraplegic. That happened when he was 19. At that age Jaime, who grew up in a BIG family in a little, predominantly LDS town (though it had more diversity than some, a lot of Greek people for instance. It was a coal mining town. Jaime's family was Mormon and he wanted so much to be a good one. He went o the requisite mission to a little island (so small I cannot remember the name) but it was pretty different. I have the impression they ate bugs. It was very poor. Jaime regaled me with stories and I wish I could remember them with greater clarity, but the braindead thing is in fill force. Anyway, Jaime was absolutely devoted to his mom. Loved her with a fierce love. His father contacted the island Jaime was serving on and, breach of the way things are done in Mormondom, told Jaime his mother was sick and not expected to live and urged him to come home to try to see her. Jaime was torn... after all a big part of LDS belief is that families can be together forever and he wanted that. But you have to be worthy. In any case he did decide to leave his mission to go see his mom. He did this but he was trying to live by the mission rules so that he was remaining worthy and when the crisis was over he planned to return to the mission field. He went home and his dad, a coal miner and of another generation wanted to try to bond with Jaime. He may have been wanting to form a stronger bond with his son who, at the time says he didnt know it, but is pretty obviously gay. I can see that. But gay is another thing you're not supposed to be if you're LDS. Anyway Jaime's dad bought him an ATV and encouraged him to ride it, Jaime really didn't want to because most recreation is disallowed when you are in the mission field, missionaries, for instance may not go swimming even on their P (personal) days. But Jaime also wanted to please his dad so eventually he gave in and took the ATV out. There are cliffs when Jaime lives and somehow he went over one. He's been paralyzed since. I think he still feels it is a punishment. His mom did recover though and I had an opportunity to meet her a few times. I never got to see the wildcat side of her Jaime so loves. Anyway I met Jaime working in the Murray office of AT&T and we became friends. I also met his niece Twila and that was when she was a rather selfish it seemed to me teen. She went through a wild period of her own life but it didn't last long. Jaime used to work 2 jobs at a time. He was quite independent and I can remember him being able to get into his white Jimmy and stow the wheelchair by himself. The man could crack walnuts with his bare hands! And funny! Jaime is very funny. But paraplegics have health problems people often don't think about, Jaime spent a lot of time in the hospital. He's a big guy, at least 6'3" and he has become very heavy. After he got fired from a HOSPITAL he was in (he nearly died) his insurance was lessened. Twila bcame is primary care giver and that isn't easy. Every time he goes to the hospital I more than half think he will not be coming out again. Sometimes it's sespsis, Not too long ago he got a bedsore that spread to the BONE and would not heal. He has had more surgeries than I can count. He was in the hospital literally for months wih that bedsore and he almost died several times. I think the only reason he survived it was Twila. She is his advocate to her bone marrow, She can tell by his behavior if something is wrong. She monitors his care like a hawk. I have seldom seen (trying to think if I've EVER seen) one human so devoted to another. Last year Twila was feeling puny. She ended up finally going to the hospital for tests and leaned that at 42 she had cervical cancer. Now, as Jaime's caretaker she did not have insurance. And there were blood transfusions (th price of those would make you sick) and surgery and radiation and chemo. She wrrote about it and it sounded so gruelling. After a time she was declared cancer free. She was still cancer free at her 3 month check up but at 6 months they found hot lymph nodes. Painful tests revealed the cancer was back. metastasized into three grwths, one above each kidney and one near her collarbone. At that time it was deemed incurable but not terminal. She's been hoping to go into remission with more chemo. She will be on chemo for the rest of her life. Her experiences have show ME that I wold NOT choose chemo. But she thinks it will extend her life. She has much to live for. She wants to live. I remember once talking to Jaime and he told me there were times he considered suicide, but his greatest fear was that if you did not face a challenge in your life and learn its lessons that you might be born again into thos circumstances until you did. I totally agree would not want to live with his challenges. The other day on the phone his voice sounded very weak and raspy. He's on oxygen now and he wasn't using it when he was talking to me because he hates the nose canula.This shortened our conversation. But I want to take every chance I get to share time with Jaime. I'm wishing Twila health wih all my heart for her sake....she is a loving and devoted person and very interesting in her own right though I dont know her as well as I would like, but also because I feel that if she goes, Jaime will not live long after that. And I was HEARTSICK when I learned that despite her cancer and the horrible treatment which has left her with deep and persistent bone pain, exhausted and with many other side effects she is STILL caring for Jaime. they don't have much in the way of medical care or household help. I just think our culture is evil for this. It's like it has said to these two people- you cannot pull your weight, do what you can for yourselves till you die. Twila's daughter, who is a CNA and a single mother trying to raise her daughter stated a fundraiser for her. The amount of money it has raised is very small Yesterday, Thursday, was my only day off last week and I paid$20 for a facebook ad I thought would bring me some grooming dogs for Thursday. I was offering a discount and wanted to donate at least $100 to Twila, but I had NO takers. I think it might have been for the best for me anyway because I am working a LOT and I am exhausted. On Tuesday night I got off at 9pm and went to the store for ingrdients for chili and for strawberry jello salad. I got hime about 10 and stated on the chili. It was midnight before i started the jello salad and that was a mistake because this is a layered salad and the first layer has to set before you can add the last two layers. It took much longer than I thought and I didn't get to bed till 3 am. I was scheduled to work from 3-9 and was planning on taking chili and strawberry salad and and chips and salsa in for a potluck for Marissa. I met Marissa in my CNA class and she is doing nursing school in Cedar City. Wednesday was her last day. And this girl is sweet beyond sweet. Her goal is to be a nurse in a clinic because she loves people and she loves nursing. You don;t meet many people like Marissa. I wanted her to feel loved. Though I too late thought chili might not be such a great idea for a Mexican girl! My friend Kim had brought over a big bag of vegetables from her garden and I used all the beautiful tomatoes and the green peppers in the batch. I got up the next day earlier than I wanted to but figured I could go to bed for a few more hours before work. I was just exhausted. But then my boss called me at 11 and was hoping I would come in. I actually thought I'd have enough time going in nearer my shift but she sounded disappointed so Ii agreed to come early (unpaid of course) On the way I stopped at the store for a few things I'd forgotten and a card and I found a terrarium I thought she might like. I then started driving to the office, no make up no nothing and I had a crock pot of chili with a loose glass lid on the floor ofth car and the strawberry salad on the seat with a BUNCH of other stuff including that fragile glass terrarium. Of course, as Utah drivers often do a big, white coffee roasting van in the median put on a turnsignal and aggressively manuevered in front of me. Normally I would have made room but with that chili on the floor and all the stiff on the seat I didn;t want to brake but he (or she) forced me to and I was in dread of all that chili and stuff that took so long to make being spilled all over the car. So, I was gesticulating and cursing which I am sure the driver didn;t even see so it was completely ineffectual and already so tired I could not remember the name of the company or I would have called to complain. Fortunately nothing DID spill. I need two other people to carry stuff in from the car. The "party" was nice but in the office itself it is small and only 3 chairs and that is crowded. And I needed to sit down. Then the owner and her son and his wife and a tech who was setting up the cloud on the new computer were in there and I tried to retreat to the driver's room because to me that was a crowd and crowds drain me. Still nice bt it made for long day. Oh! and at the VERY end a drier called me and told me he had traded with another young driver who had something happen to his grandfather. The older one did not want to be called back but the trade messed up the whole schedule because the older one thought he wold be able to keep a Zion run he'd agreed to do but the later shift meant he couldn't and thr was no other driver so at past the time I was supposed to leave- 9 pm I am calling a customer to cancel the run he was on (that by itself turned into 3 calls) and talking with my boss and redoing the boards and everything. It was 9:30 before I left and THEN I thought I had missed a spa pick up which meant I should have printed something I hadn't so I had to go BACK and there is no place at all to tun around on the back road I take. I was nearly home before I could turn round. When I got back I learned the spa pick up was on the noon and didn;t need to be printed by me after all. I was just doe in by the time I fianlly go home. Thursday I was actually grateful I had no dogs (though also sad) I stayed in bed the whole day and read and rested. In the evening Bruce came in and said it was funny that he could recommend books to me and I would never read them (partially true id it is about his religious belief) but that if JIM recommended a book I would order and read it immediately. This is also true. But it's because I tend to really like Jim's book recommendations. I told Bruce that and that Jim and I communicate almost not at all. And of course i was thrown into thinking about THAT whole can of worms on and off for the rrest of the night. Bruce is not a jealous person but I could tell he felt minimized by how i responded. And my mind was going for hours about it. It is an odd situation. I will never satisfactorily be able to explain it to anyone but from the time I saw jim I felt i was born to love him. When I finally realized that was not a mutual thing and that I had to leave I have said before i don;t understand why I didn;t just die. It would have been better. That loss stripped me irretrieveably of my sense of self worth, of my sexuality of myriad aspects of life you wouldn;t think it would and the damage to me continies and I see not end to it as long as I liv. If we levw othr lives I hope i somehow get around it. It cost me my whole library because i couldn;t look at my books without thinking of Jim.... I couldn't begin to explain it all. Bruce knows I spent 15 years without so much as holding a man's hand and he knows how Miles surpried me and showed me i could love again which I never ever thought I would. And really, I feel insane about the whole thing and just want it to be quiet as possible because how can you really blame a young man for not having the depth and intensity I did? I can't. Though there are times like when I read him spout feminist stuff I throw up a bt n my mouth and he is given to doing that. I can't not react. And I still hurt that I feel he lied to me and could not even end something he wanted an end to in a respectful way. I just try to wall this off inmyself. I half think I should have told Bruce that while I will never be affected like that, that any relationship I have in this lif at least will never match that intensity or effect i also never intend to look into those eyes again and I don;t expect any depth of commuication. I will never put myself into a position of such vulnerabilty again. And Bruce is my good friend and companion. He has proven trustworthy and caring for almost 13 years now. It is what it is and I would never want tohurt him or disrespect him. But yeah, I will read a book if Jim recommends it. And I am really likiing this one. Let me have that litle pleasure!
Again it is late and I went shopping but did not have the energy to cook so hopefully I will in the morning. I sure hope i get some good sleep, but I think I forgot to take my pill so likely I will not. Dang